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Visions and Voices: Indigent Persons Living With HIV in the Southern United States Use Photovoice to Create Knowledge, Develop Partnerships, and Take Action

Department of Social Sciences and Health Policy, Division of Public Health Sciences, and the Maya Angelou Center on Minority Health Research at Wake Forest University School of Medicine in Winston-Salem, North Carolina

Kenneth C. Hergenrather, PhD, MSEd, MRC, CRC

Center for Rehabilitation Counseling Research and Education and the Department of Counseling, Human and Organizational Studies at the George Washington University in Washington, DC

Aimee M. Wilkin, MD, MPH

Section on Infectious Diseases, Department of Internal Medicine, Wake Forest University School of Medicine in Winston-Salem, North Carolina

Christine Jolly

Little is known about the experiences of persons living with HIV/AIDS (PLWHA) in some regions of the United States that are disproportionately affected by HIV/AIDS. "Visions and Voices: HIV in the 21st Century" was an exploratory study to gain insight into the life experiences of 15 indigent PLWHA. The study used photovoice to uncover the realities of living with HIV/AIDS though photographic documentation and Freirean-based critical dialogue and facilitate a process for PLWHA to reach local community members and leaders, policy makers, and advocates to develop plans of action and effect change. From the participants' photographs and words, seven themes emerged and were presented during a community forum. Three main outcomes occurred, including a participant-developed and locally funded gallery exhibition to address HIV/AIDS misinformation and stigma; a new partnership with the public health department to use PLWHA in their prevention programming; and increased community efforts to address substance use.

Key Words: Photovoice • community-based participatory research • CBPR • HIV • indigent • qualitative research

This version was published on April 1, 2008

Health Promotion Practice, Vol. 9, No. 2, 159-169 (2008)
DOI: 10.1177/1524839906293829


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