|
Sign In to gain access to subscriptions and/or personal tools.
|
Visions and Voices: Indigent Persons Living With HIV in the Southern United States Use Photovoice to Create Knowledge, Develop Partnerships, and Take Action
Scott D. Rhodes, PhD, MPH, CHES
Department of Social Sciences and Health Policy, Division of Public Health Sciences, and the Maya Angelou Center on Minority Health Research at Wake Forest University School of Medicine in Winston-Salem, North Carolina
Kenneth C. Hergenrather, PhD, MSEd, MRC, CRC
Center for Rehabilitation Counseling Research and Education and the Department of Counseling, Human and Organizational Studies at the George Washington University in Washington, DC
Aimee M. Wilkin, MD, MPH
Section on Infectious Diseases, Department of Internal Medicine, Wake Forest University School of Medicine in Winston-Salem, North Carolina
Christine Jolly
Little is known about the experiences of persons living with HIV/AIDS (PLWHA) in some regions of the United States that are disproportionately affected by HIV/AIDS. "Visions and Voices: HIV in the 21st Century" was an exploratory study to gain insight into the life experiences of 15 indigent PLWHA. The study used photovoice to uncover the realities of living with HIV/AIDS though photographic documentation and Freirean-based critical dialogue and facilitate a process for PLWHA to reach local community members and leaders, policy makers, and advocates to develop plans of action and effect change. From the participants' photographs and words, seven themes emerged and were presented during a community forum. Three main outcomes occurred, including a participant-developed and locally funded gallery exhibition to address HIV/AIDS misinformation and stigma; a new partnership with the public health department to use PLWHA in their prevention programming; and increased community efforts to address substance use.
Key Words: Photovoice community-based participatory research CBPR HIV indigent qualitative research
References
- Altman, D.G. (1995). Sustaining interventions in community systems: On the relationship between researchers and communities. Health Psychology, 14(6), 526-536.[CrossRef][Medline]
[Order article via Infotrieve]
- Arnstein, S.R. (1969). A ladder of citizen participation. American Institute of Planning Journal, 35, 216-224.
- Berry, D.E. (1993). The emerging epidemiology of rural aids. Journal of Rural Health, 9(4), 293-304.[Medline]
[Order article via Infotrieve]
- Booth, T., & Booth, W. (2003). In the frame: Photovoice and mothers with learning difficulties. Disability and Society, 18(4), 431-442.[CrossRef]
- Centers for Disease Control and Prevention (CDC). (2005). HIV/AIDS Surveillance Report, 2003 (No. 15). Atlanta, GA: U.S. Department of Health and Human Services.
- Crosby, R.A., Yarber, W.L., DiClemente, R.J., Wingood, G.M., & Meyerson, B. (2002). HIV-associated histories, perceptions, and practices among low-income African American women: Does rural residence matter? American Journal of Public Health, 92(4), 655-659.[Abstract/Free Full Text]
- Ellerbrock, T.V., Chamblee, S., Bush, T.J., Johnson, J.W., Marsh, B.J., Lowell, P., et al. (2004). Human immunodeficiency virus infection in a rural community in the United States. American Journal of Epidemiology, 160(6), 582-588.[Abstract/Free Full Text]
- Freire, P. (1970). Pedagogy of the oppressed. New York: Herder and Herder.
- Freire, P. (1973). Education for critical consciousness. New York: Seabury.
- Glaser, B.G., & Strauss, A.L. (1967). The discovery of grounded theory: Strategies for qualitative research. Chicago, IL: Aldine.
- Green, L.W., Krueter, M., & Krueter, M.W. (1999). Health promotion planning: An educational and environmental approach (3 ed.). Mountain View, CA: Mayfield Publications.
- Hall, H.I., Li, J., & McKenna, M.T. (2005). HIV in predominantly rural areas of the United States. Journal of Rural Health, 21(3), 245-253.[CrossRef][Medline]
[Order article via Infotrieve]
- Institute of Medicine. (2003). Unequal treatment: Confronting racial and ethnic disparities in health care. Washington, DC: National Academy Press.
- Israel, B.A., Schulz, A.J., Parker, E.A., & Becker, A.B. (1998). Review of community-based research: Assessing partnership approaches to improve public health. Annual Review of Public Health, 19, 173-202.[CrossRef][Medline]
[Order article via Infotrieve]
- Lopez, E.D., Eng, E., Randall-David, E., & Robinson, N. (2005). Quality-of-life concerns of African American breast cancer survivors within rural North Carolina: Blending the techniques of photovoice and grounded theory. Qualitative Health Research, 15, 99-115.[Abstract/Free Full Text]
- Lykes, M.B., Blanche, M.T., & Hamber, B. (2003). Narrating survival and change in Guatemala and South Africa: The politics of representation and a liberatory community psychology. American Journal of Community Psychology, 31, 79-90.[CrossRef][Medline]
[Order article via Infotrieve]
- McIntyre, A. (2003). Through the eyes of women: Photovoice and participatory research as tolls for reimagining place. Gender, Place and Culture, 10, 47-66.[CrossRef]
- McKinney, M.M. (2002). Variations in rural AIDS epidemiology and service delivery models in the United States. Journal of Rural Health, 18, 455-466.[Medline]
[Order article via Infotrieve]
- Morse, J. (1994). Designing funded qualitative research. In N. Denzen and Y. Lincoln (Eds.), Handbook of qualitative research (pp. 220-235). Thousand Oaks, CA: Sage.
- North Carolina Department of Health and Human Services, Epidemiology and Special Studies Unit, HIV/STD Prevention and Care Branch, Epidemiology Section, Division of Public Health. (2001, November). Health disparities and trends in HIV/STD/AIDS. Raleigh: Author.
- O'Fallon, L.R., & Dearry, A. (2002). Community-based participatory research as a tool to advance environmental health sciences. Environmental Health Perspectives, 110 (Suppl. 2), 155-159.[Medline]
[Order article via Infotrieve]
- Peri, T.A. (1995). Promoting spirituality in persons with acquired immunodeficiency syndrome: A nursing intervention. Holistic Nurse Practice, 10(1), 68-76.
- Rhodes, S.D., & Benfield, D. (2006). Community-based participatory research: An introduction for the clinician researcher. In J. D. Blessing (Ed.), Physician assistant's guide to research and medical literature (2nd ed., pp. 105-118). Philadelphia: F. A. Davis.
- Rhodes, S.D., Hergenrather, K.C., Wilkin, A., Alegria-Ortega, J., & Montano, J. (2006). Preventing HIV infection among young immigrant Latino men: Results from focus groups using community-based participatory research. Journal of the National Medical Association, 98(4), 564-573.[Medline]
[Order article via Infotrieve]
- Ricketts, T. (1999). Rural health in the United States. New York: Oxford University Press.
- Scott, J. (1985). Weapons of the weak. New Haven, CT: Yale University Press.
- Shaffer, R. (1983). Beyond the dispensary: On giving community balance to primary health care. Nairobi, Kenya: AMREF.
- Silverman, D. (2001). Interpreting qualitative data: Methods for analysing talk, text and interaction. London: Sage.
- Southern State Directors Work Group (National Alliance of State and Territorial AIDS Directors [NASTAD]). (2003). Southern states manifesto: HIV/AIDS and STDs in the South. Washington, DC: Author.
- Sowell, R.L., Moneyham, L., & Aranda-Naranjo, B. (1999). The care of women with AIDS: Special needs and considerations. Nursing Clinics of North America, 34(1), 179-199.[Medline]
[Order article via Infotrieve]
- St Lawrence, J.S. (1999). Emerging behavioral strategies for the prevention of HIV in rural areas. Journal of Rural Health, 15(3), 335-343.[Medline]
[Order article via Infotrieve]
- Stephenson, J. (2000). Rural HIV/AIDS in the United States: Studies suggest presence, no rampant spread. Journal of the American Medical Association, 284(2), 167-168.[Free Full Text]
- Strack, R.W., Magill, C., & McDonagh, K. (2004). Engaging youth through photovoice. Health Promotion Practice, 5, 49-58.[Abstract/Free Full Text]
- Streng, J.M., Rhodes, S.D., Ayala, G.X., Eng, E., Arceo, R., & Phipps, S. (2004). Realidad Latina: Latino adolescents, their school, and a university use photovoice to examine and address the influence of immigration. Journal of Interprofessional Care, 18, 403-415.[CrossRef][Medline]
[Order article via Infotrieve]
- U.S. Census Bureau. (2005). 2005 American Community Survey Data profile highlights: North Carolina fact sheet. Retrieved July 22, 2005, from http://www.census.gov
- Viswanathan, M., Eng, E., Ammerman, A., Gartlehner, G., Lohr, K.N., Griffith, D., et al. (2004). Community-based participatory research: Assessing the evidence (Evidence Report/Technology Assessment No. 99). Rockville, MD: Agency for Healthcare Research and Quality.
- Wang, C.C., & Burris, M.A. (1994). Empowerment through photo novella: Portraits of participation. Health Education Quarterly, 21, 171-186.[Medline]
[Order article via Infotrieve]
- Wang, C.C., & Burris, M.A. (1997). Photovoice: Concept, methodology, and use for participatory needs assessment. Health Education & Behavior, 24, 369-387.[Abstract/Free Full Text]
- Wang, C.C., Cash, J.L., & Powers, L.S. (2000). Who knows the streets as well as the homeless? Promoting personal and community action through photovoice. Health Promotion Practice, 1, 81-89.[Abstract]
- Wang, C.C., Yi, W.K., Tao, Z.W., & Carovano, K. (1998). Photovoice as a participatory health promotion strategy. Health Promotion International, 13, 75-86.[Abstract/Free Full Text]
- Whetten-Goldstein, K., & Nguyen, T.Q. (2002). "You're the first one I've told": New faces of HIV in the South. New Brunswick, NJ: Rutgers University Press.
- Woodard, E.K., & Richard, S. (2001). God in control: Women's perspectives on managing HIV infection. Clinical Nursing Research, 10, 233-253.[Abstract/Free Full Text]
This version was published on April
1, 2008
Health Promotion Practice, Vol. 9, No. 2,
159-169 (2008)
DOI: 10.1177/1524839906293829

CiteULike Complore Connotea Del.icio.us Digg Reddit Technorati Twitter What's this?
|
|